TOURETTE SYNDROME ASSOCIATION

Utah Chapter

 
 

Chapter services

  1. •Monthly support meetings

  2. •Educational/training events

  3. •Chapter resource lending library

  4. •New Member information packets

  5. •Bi-annual newsletter

  6. •Email list

  7. •Annual summer family picnic

  8. •Spring family get-together

  9. •Toll-free hotline (866) 274-0700

  10. •Educational advocacy

Welcome

Welcome to the Utah Chapter site of the Tourette Syndrome Association. We are the local chapter of the national TSA organization, serving as a resource for individuals who have Tourette Syndrome and their families. Membership is open to anyone who is interested in Tourette Syndrome.

Events and announcements

  1. •We hold concurrent adult and children’s Support Group meetings on the first Wednesday of every month from 7:00 until 8:30 p.m. We are no longer meeting at the University of Utah for these meetings. On Sept. 3, we will meet at Southwood Park (6150 S 725 E Murray UT) from 7 p.m. to 8 p.m.

  2. •We need to fill a few positions on the TSA-Utah board. If you are interested in helping us as our treasurer, meeting coordinator, or planning committee co-chair, please call (718) 224-2999 or email us.

New Picnic Photos!

Did you come to the 2008 August family picnic? It was another fun and informative evening. Thanks to everyone who worked hard to plan and carry it off, especially Sarah, Kara, and Kelsey. Also, thank you to the four distinguished members of the Q & A panel -- Cal Cazier, Taylor Harper, Aja Swalberg, and Keaton Otto. We greatly appreciate the personal insights they shared with us. Finally, thank you to all the supportive family members who came, especially those wonderful grandparents and even aunts and uncles! Click around the website to see who was there ...

Tourette Syndrome Age Study

Starting this September, Lisa Cox, Ph.D., will conduct a study on the impact of TS in the lives of people over 55 years of age. This study has been approved by the TSA National Medical Advisory Board. If you would like to learn more, please contact Dr. Cox at 609-652-4310 or email her at lisa.cox@stockton.edu. Dr. Cox is a licensed clinical social worker and an Associate Professor of Social Work and Gerontology at The Richard Stockton College of New Jersey’s School of Social and Behavioral Sciences.

Please take action in support of the Parity Act

Due to health coverage discrimination and inappropriate treatment, patients with Tourette Syndrome pay far more than they should have to for medical services. Recently, the US House of Representatives and Senate have come to an agreement on the key health provisions of the Mental Health Parity Act, which would provide financial relief to those who pay an exorbitant amount of out-of-pocket money for mental health coverage. In September, this bill is expected to be brought to the floor for a conclusive vote. However, Congress must find a source of funding to offset its $3.8 cost. This can be done and must be resolved before the end of the 110th Congress in 2008. You can help. To take action, write to your representatives and senators during this Congressional August Recess to convey your support of the Mental Health Parity Act. Be sure to share your personal story to demonstrate the need for Parity. Click here for more information and a sample draft letter you can use. If you have questions about the Parity act and how you can help, please visit the national TSA Public Policy Website or send us an email.